I'm so sorry to hear about this ordeal that your daughter is going through.
I remember when we told our daughter's cardiologist that we were witnesses (my husband was going along with it as much as he could to respect my beliefs).
He looked at me with this sort of amazement. I look back now, with that same sort of amazement. Truth be told, I remember her doctor saying the same thing about growth.
Hang in there, at least you know now and go forward.
Please keep us posted so we can send warm thoughts and prayers your way.
meagan